| Hi, I am a single father, caring for my 15 year old son. I am Jon Sr. He is Jon Jr. He broke his neck last year while riding his dirt bike, just messing around. He is now a C4-6 quad, and there seems to be no help from anywhere to help care for him. I work all day and when I get home its non-stop, until midnight. We get up at 5:25 am to get ready to go to high school. The bus picks him up at 6:20 am, and he gets home at 2:15 pm. My 18 year old daughter takes care of him until I get home around 7:30 pm. She's going to have to get her own life soon. I don't mind the caring, I love him dearly and he has a great attitude for what he has gone through. I just worry I don't give him the best care he needs. I'm always doing everything, but I cannot do it all, and he needs to exercise more, and I would do more, but I would have to be up an extra hour. Right now I end up in bed around 12:20 am and up again at 5:20 am. I feel like me and him are going to wear out physically, I'm just looking for some help for when he gets home from school to do more exercising for circulation, but that is not medically necessary, so insurance will not cover it, but I think without it he will lose 10-15 years off his life span and that is just not fair. It seems you need to be on the phone full time to fight for what he needs, and I have to continue to work to pay the bills. I know we can all go on and on about what we go through, but I just needed to let out a little frustration, thank you.
Wish List:
1) Help for his sake, a parent should not have to be a nurse, at least 2-3 hours a day
2) Better communication with the insurance companies, it would take more people off state programs and help the budget
3) I just want him to be more concerned about his needs, so he can stay healthy. | 
